Hannah

Hannah was seen by her nurse today. She has been struggling to gain weight. She grew 1/3" and gained 5oz. So her Body Mass Index has plummeted even further. She is malnourished and we have to put her back on tube feedings now. She has to have her tube replaced because the closure broke on it. We go in on Friday to the surgeon's office. He will replace it for us. It is supposed to be quick but they have to restrain the kids. This sucks big time let me tell you! But it will be very good to get her metabolism functioning correctly again and hopefully we can try again soon to get Hannah to stay out of a cronically starved plateau. Pray for Hannah as she struggles with this terrible disorder. It makes me pretty angry that this isn't something she can't just get out off. She is currently under the 3rd percentile for her weight to height ratio. 28lbs 2oz and 41.06 inches tall.